The Sarcoidosis Health Study

How can we better understand how sarcoidosis affects people's lives?

The Sarcoidosis Health app is a personalized tool designed to help track the effects of sarcoidosis and its treatments on your daily life. The insights gained from this study may help raise awareness of the impact of sarcoidosis, with the ultimate goal of improving quality of life for people with this disease.

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Key Features

Learn:

  • More about sarcoidosis
  • About national advocacy groups

Find:

  • Local sarcoidosis experts
  • Support groups in your area

Record and track:

  • Physical activity such as the number of steps you take

Optionally participate in medical research to help scientists understand sarcoidosis and raise awareness.

 

 

 

 Eligibility

To join this research study you need to:

  • Be 18 or older
  • Live in the United States
  • Be comfortable reading English on your iPhone

This app will read and write data from Apple’s Health App, and periodically track location data, with your permission.

 

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Investigators

Misha Rosenbach, MD, Director of the Cutaneous Sarcoidosis Clinic at the University of Pennsylvania, is the principal investigator (PI) responsible for the Sarcoidosis research project design and execution, along with:

Marc Judson, MD, Chief of Pulmonary and Critical Care Medicine at Albany Medical Center.

In collaboration with the Foundation for Sarcoidosis Research.

FAQ

Is the app available for Android devices?
Currently the app is only available for iPhones. Depending on initial interest, uptake, and feedback regarding the benefits to patients, and on the data obtained from the optional research component, the developers are hoping to port the app onto Android devices later this year.

Is the app available in languages besides English?
Currently the app is available in English. Depending on initial interest, uptake, and feedback regarding the benefits to patients, and on the data obtained from the optional research component, the developers are hoping to get the funding necessary to translate the app broadly into other languages.

Is the app available outside the US?
Currently the app is being utilized in the US only. The developers anticipate expanding to worldwide use later in 2017.

How can I help make these things happen?
We recommend downloading the app, using it, rating it positively on the App store, and recommending it to others who may benefit from it. The more users who participate and data generated during the initial roll-out, the more the development team will be able to achieve down the road with additional functionality and accessibility.